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The NF Registry is a Tool for All


If you or your child have NF1, NF2, or schwannomatosis, we need your help building NF “patient power.” The NF Registry was started by the Children’s Tumor Foundation in 2012 to do the following:


  • Let people know about new clinical trials (new potential treatments) for NF
  • Provide patients with facts and figures about the NF community as a whole
  • Learn how NF changes over a person’s lifetime
  • Help researchers understand what makes one person’s symptoms different from another's
  • Better inform qualified NF researchers from all over the world about issues people with NF care about most

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NFRegistry Brochure
Download the NFRegistry Brochure.

Registration Goal

Goal: 10000
Current: 9815